My job is unlike any other job. Today my “job” was more of a privilege. This family is truly inspirational and I copied some information below to share more of their story. Here is a little bit from the 30 minutes that I spent with them. The two girls are in a wheelchair and will possibly never walk. However, their attitudes and their parents attitudes are remarkable. The swinging photos may look like normal photos to you, but this is what the younger girl said, “Mommy, I feel like I’m flying!” It almost brought tears to my eyes. It was just such a heartwarming and heart wrenching moment at the same time.
Brielle and Brooke Kennedy are two little girls who have been diagnosed with Spinal Muscular Atrophy (SMA Type II). SMA is devastatingly terminal. It is an incurable muscle wasting disease. For more information or to support the SMA research, please visit: http://www.brielleandbrooke.com.